Sunday, March 28, 2010

Roller Coaster Ride

I think Jeff and I better get used to one step forward, two steps back for a while. It has only been a few weeks and we are on such a roller coaster ride of emotions. Caedyn had two seizures this past Thursday - exactly two weeks from her last. Can't life just be easy? We were really hoping that the meds would keep her seizures at bay, and really, they have for the most part. However, I don't know how much of this roller coaster I can ride! We just start getting comfortable and BAM! another seizure to make us terrified again. So, after increasing her Keppra to 200mg twice a day and still decreasing the Valium, she seems to be tolerating this well. She is not having any adverse effects to the increased meds, thank the Lord, and doing great.

Scratch I am writing this. Caedyn had another seizure. Do we ever get used to this? No. Is it something we need to learn to accept? Obviously. So, we called the Dr. yet again and he upped her meds to 250mg twice a day. I am hopeful and prayerful that this will keep her episode free from now on. I can't help but wonder if tapering her Valium has anything to do with the increased seizures. I will make sure to check with the Dr. on that Monday.

On a more positive note, Caedyn rolled over on Friday. It was a joyous day in the Hennip household! It was more exciting because Dr. Umfleet was concerned that Caedyn has some developmental delay due to a diagnosis of Periventricular Leukomalasia (say that ten times fast). He was concerned that at six months she still wasn't rolling over or showing much interest. Well, we have learned to take what doctors say with a grain of salt. I never really thought that she was delayed, but when the idea is put in your head, you can't help but analyze every developmental milestone. So, she is so far on track developmentally. We can't be more thankful.

Please continue to keep us in your prayers. Please pray that we can get Caedyn's seizures under control and that all her tests come back normal. Please continue to pray for our family as each seizure is an emotional setback. We are so thankful for your prayers and continued support!

1 comment:

  1. Andrew didn't roll over till he was 6 months either. And at 9 months old he still hasn't rolled over from his back to his tummy. I thought it might be reason to be concerned, but come to find out there are quite a few kids that never roll over and go straight to walking!! Yes, doctors words and stats definitely have to be taken with a grain of salt.

    I'm so sorry to hear about the increased seizures. I'm sure the day when you have her meds regulated can't come soon enough. We are certainly still praying and hoping that things get easier. Hang in there.